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Tuesday, May 2, 2017

Appointments, Jakafi and the waiting game

Brad was put on a accelerated new drug called Jakafi that is doing wonders for GVHD treatment.  It is actually a chemo drug for certain melanoma's (I think) and we are patiently waiting for it to "kick in". We have been told it can take a year.  In the meantime, he is feeling miserable and also got sinusitis (I think this might be his 3rd time he's gotten this.  
Check up with Tara Gregory at CBCI


 It's difficult (and painful as you can see) for RN's to get a vein because of his skin condition.
                                                 My poor baby sleeps a ton.  Healing!!!
It's not hard to notice when Brad is not feeling well.  His body language says it all.

We decided to go shop at a medical store and get him some good compression socks. and an aperture to help him put on his socks.  And we also got him his own fitted cane instead of him having to use Papa's.