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Wednesday, December 21, 2016

Summer and fall of 2016

The days roll into months as Brad still battles the GVHD.  He feels terrible 95% of the time.  Last check up with Tara Gregory she said that the drugs he is on have a lot to do with the way he feels.  She said "they make you feel like shit".  They have been weening him of certain drugs for sometime now and it has been a challenge.  His body is just not strong enough to fight back yet and take over where Aaron's cells are dominating. It's not been fun.  Last night he told me that he's lost hope with Heavenly father, Jesus Christ, & Papa. He's looking for any help from the other side and not feeling it it. It's effecting everything, both family, work, church, everything.  We are at the point of seeking help through Eastern medicine, specifically acupuncture. And I am seeking some help mentally dealing with an ailing husband.  I am hoping to hook up with a support group soon.  Prayers prayers prayers.

Kids make Brad happy-they are like medicine!  

This was a LLS event, black tie event I should add, that Brad and I were underdressed for.  Brad wanted to surprise me so he didn't give me details and he didn't know that "cocktail attire" meant to dress up!! I was literally in rags.  I gave him such a hard time this night.  I regret being such a brat about it.  But we had a good time, nonetheless.


 Edema and GVHD

 Tired guy at one of his CBCI checkups.  He sometime doesn't sleep well. 
 Terrible scabbing, peeling rash from GVHD