Summer and fall of 2016

The days roll into months as Brad still battles the GVHD.  He feels terrible 95% of the time.  Last check up with Tara Gregory she said that the drugs he is on have a lot to do with the way he feels.  She said "they make you feel like shit".  They have been weening him of certain drugs for sometime now and it has been a challenge.  His body is just not strong enough to fight back yet and take over where Aaron's cells are dominating. It's not been fun.  Last night he told me that he's lost hope with Heavenly father, Jesus Christ, & Papa. He's looking for any help from the other side and not feeling it it. It's effecting everything, both family, work, church, everything.  We are at the point of seeking help through Eastern medicine, specifically acupuncture. And I am seeking some help mentally dealing with an ailing husband.  I am hoping to hook up with a support group soon.  Prayers prayers prayers.

Kids make Brad happy-they are like medicine!  

This was a LLS event, black tie event I should add, that Brad and I were underdressed for.  Brad wanted to surprise me so he didn't give me details and he didn't know that "cocktail attire" meant to dress up!! I was literally in rags.  I gave him such a hard time this night.  I regret being such a brat about it.  But we had a good time, nonetheless.

 Edema and GVHD

 Tired guy at one of his CBCI checkups.  He sometime doesn't sleep well. 

 Terrible scabbing, peeling rash from GVHD

Yikes

Looking back I thought that Brad's GVHD was "under control somewhat" but boy was I wrong.  He actually looked good in those photos.  Now, his GVHD has flared up so bad that he is limited to what he can do.  Simple things like putting on his socks require my help.  They have him on 90 MG of Steroids with the plan to taper down to 10 MG each week.  Because the pain is so bad, they also prescribed Morphine so he is drugged up more than ever.  This was his GVHD about month ago...

It has since increased in redness and spread

We finally put in a request for a handicap tag since Brad is having so much trouble walking.  

October-December 2015

From October to December Brad did OK.  He certainly sleeps ore than usual, I think because his body is working so hard at trying to acclimate to Aaron's new cells.  GVHD is under control somewhat.

Check up and I got to go this time so I took our traditional waiting room selfie. 

 Aaron took this one.  Brad spiked another fever and so off to the ER he went in a snow storm.  Grateful for family that are here to help.  Turns out they sent him home.  Precautionary as with anything pertaining to Brad's health!!