I am back in the hospital for hopefully only 24 hrs. Yesterday I came in for my normal appointment and all my numbers looked good but my liver counts were about 1100 points higher than they should have been. 5 days earlier they were in the normal range yesterday they jumped 1100 points. BIG concern. It's one of three things. CLL attacking my liver, which we don't think because my counts are good. infection which they are testing for and will get the results back tomorrow morning or what they are pretty confident it is is GVHD. Aaron's cells are recognizing my liver as being foreign and are attacking it. GVHD is a good thing to a certain point and they can treat it as long as it isn't too severe. I am getting ready to go in for a liver biopsy around 1:30 where they will stick a camera and wire down a vein in my neck to my liver to cut out a chunk. They will sedate me. The docs will see me first thing in the morning to give me all the results and then I go home unless the results are bad. Which they won't be. They have me on some high powered steroids as well which can wreak havoc on my diabetes. So they really want to keep a close eye on that. Blood sugar gets too high and I am high risk for infection. But don't worry it will all work out.
LISA:
It has been a roller coaster ride as each day brings something new. Last we checked his double bone marrow biopsy came back as showing only 5% CLL! Wonderful news, yet Brad was still extremely fatigued. Which is where we are at today with the news of his liver. Docs say that it is functioning, but irritated and working really hard. It's important for me to add that I love this man with all my heart. The strength and courage he has shown through this journey has been amazing and I feel privileged to be a part of his life.
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